New research demonstrates value of patient involvement in service design

The region has been part of a long running research study looking at the impacts of re-organisation of hospital stroke services in Manchester and London versus the rest of the country. It was this research that prompted us to further re-design our care pathway in 2015 as the evidence showed we weren’t saving as many lives as the London model.

A new peer reviewed paper has been published entitled, ‘Patient, carer and public involvement in major system change in acute stroke services: The construction of value’.

You can read the full article (open access) on the Health Expectations website here

The study team have also produced an ‘at a glance’ summary of the paper.

Overview of findings

  • The paper presents evidence that patients and the public were involved planning major system change in stroke services in a range of ways, including 1) consultation exercises, 2) participation in governance structures, and 3) seeking views from individual patients and carers.
  • We found that people’s opinions of these activities varied, reflecting their existing views on how involvement should work. The value of involving patients, carers, and the public was seen in terms of 1) helping manage/pre-empt agitation (e.g. objections to changes); 2) providing verification of people’s perspectives; and 3) substantiation – bringing people ‘into the room’ where key decisions were discussed and reached.
  • We conclude that involvement was felt to have both strategic value (facilitating implementation of changes) and intrinsic value (permitting public participation in the changes), and argue that ‘value’ may be more important than ‘impact’ when trying to understand public involvement in health service development.

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